Friday, August 25, 2006

Hi everyone

Hey everyone,

I haven't been on in quite awhile. I have been busy with the new baby (she's now 5 1/2 months old), work and my online college courses. The migraines are still as annoying as ever to say the least. I have not found any success yet. I had been hoping that after my pregnancy I could try new medicines and find something to help. I didn't find much of anything.

But life does march forward. And now I have a little one to help keep me going.

Sunday, December 04, 2005

I'm back

Hey everyone, I haven't posted in a long time. Had a rough few weeks but am feeling better. I have had some pregnancy difficulties and the usual migraines. But the baby is doing great!!!!!!

My migraines have not really gotten any better during my pregnancy. I know a lot of women experience an improvement in migraines. Some people have even had a cessation of migraines during their pregnancy. If anyone has a story about their pregnancy and migraines, I would love to here. I am sure others would too.

I never thought my medicines helped that much. But now that I am no longer on my usual treatment plan, I realize they may have been doing better than I thought. This is helpful to me because after my baby is born I can try again. With a more positive attitude perhaps I will be even more responsive to my treatment plan.

Monday, September 19, 2005

Migraines and Pregnancy

Before i became pregant I suffered from severe, intractable migraines. Now that I am pregnant, I still suffer from severe and intractable migraines. This brings up quite a challenge as most of the medicines I could take before, I no longer can. The only thing that keeps me going is the miracle growing inside of me.

I want my baby to be happy and healthy. I know that most medications are not safe or basically we dont know if they are safe. However, I also know that I have been having such serious migraines and for so long that I worry about a stroke or a disruption of my blood flow. To me this may be an even greater risk to the baby.

The other day I had to go to the ER. I will leave out a lot of the story to make a long story shorter. But I experienced a horrid and extended aura of blindness. I was out of it, confused. slurred my words etc. The ER experience was not too bad.

But today I see my OB and discuss what we can try to do for these migraines. Neurology thinks I am having complex migraines now and I am concerned about having these migraines ALL the time. So I discuss this with OB. He told me, "well you are going to have to put up with your migraines more now that you are pregnant." Then when I said again about the seriousness, he was again like, "you are just going to have to deal with it."

He made me feel like I'm a horrible mother (to-be) for even asking. When really all I want is to make sure the baby is going to be ok. It isn't about my pain for in many ways I have learned to live with that. Anyone who suffers chronic pain knows there often isn't much you can do.

Thursday, August 25, 2005

I heard my baby's heartbeat for the first time

I have been meaning to post this all week, but I have been struggling with a wicked migraine. On Monday I heard my baby's heartbeat for the first time. I was so excited! It was amazing. Sometimes I worry that someday my child will be afflicted with this horrible illness: migraines. I hope and pray that it is not the case.

My migraines seemed to be set off after I was in a car accident. So I am hoping that was in some way the cause. If it is not genetic in my case, than I believe chances are good my child won't suffer migraines.

In the meantime I am working hard to take as good of care of myelf as possilbe. It is not easy with these migraines but I am trying hard to get plenty of rest and fluids in me. It's not just me I am thinking about these days. I have the little one to take care of too!

Friday, August 19, 2005

My life; a work in progress

I have come to the conclusion lately that my life is a work in progress. It wasn't always this way, at least that isn't the way i used to see my life. There was a time not all that long ago when I had plans (big plans) or so I thought. I was going to graduate school, go to college, earn a degree, get a great job and leave my small hometown. Then I would meet a wonderful man, fall in love, get married and have a couple kids.

So far, life hasn't quite worked out that way. I graduated high school, started college, became ill and had to leave school for awhile. I got married young and divorced rather quickly. The migraines turned into intractable migraines with horrible symptoms. There are those days when I'm partly blind, or days when I pass out. Sometimes I cannot speak other times I cannot think clearly. I finished my degree online. But so far I have't landed that great job.

My life is still a work in progress. I blame it on the migraines. I'm sure that is most of it, but some of the reason my life has not going according to plan is because of the decisions I have made. I try hard and I think that's what is important. That is what counts.

Last night was the worst

Last night had to be the worst migraine I have had in ages. In fact, it was one of the worst ever. It was a long, long night. Luckily I was feeing better for awhile this morning, although the pain level I can tell is ready to rise again.

To all my fellow migraine sufferers, I hope today is a good day for you. We can always hope that our dear friends are having one of their good or even better yet; pain free days. I know for a lot of us those days can be far and few between, but that is why we need to look at the good things in our lives.

I know when I am in the midst of a monster of a migraine, sometimes I find it difficult to keep a positive outlook. It is hard to do so at times but certinaly not impossible!
Have a good day everyone!

Thursday, August 18, 2005

Some Good News

Well for the past two years I have often found myself debilitated due to migraines. It has made it difficult to continue my education (although I have), to work and to live a normal life. I have lived with a roomate for the past two years. She owns a home and rented me a room and allowed me to set up a little computer room as well.

After all this time, i am getting my own apartment. I have never totally lived on my own. I am only in my 20's but I have already been married and divorced. (Yeh I was married young). So I lived with my parents. Then I got married. And then I lived with a roomate.

I am nervous about living alone because of how bad I get at time.s. But I am also very excited!

Sunday, August 14, 2005

Not Your Ordinary Migraines


If you have been reading my posts, you will know that I am a migraine sufferer. Living with intractable migraines is no fun. My migraines are often not your ordinary migraines. But then again, I do not know if there is such a thing.

Migraines are to last from 4-72 hours. They say if your migraine lasts for more than 72 hours, you are at an increased risk for stroke. Yet for many of us who suffer chronic migraines, we can go days, weeks or even months with a migraine of different intensity levels.

For many a migraine is something like this: severe head pain that is often one sided, perhaps dizziness, often light and sound sensitivity and vomiting. For some a migraine is a montly occurance or less. For others of us it is a weekly, several times a week or even at times a daily occurance.

Some symptoms of stroke include numbness in the face, arms or legs (most often on one side of the body, slurred speech or difficulty speaking, acting confused or incoherant, difficulty seeing, loss of balance or coordination. And yet for some migraine suffers such as myself these are common migraine symptoms for us.

During a severe attack, I often become confused or disoriented. The worse thing that ever happened to me was driving home from work with a migraine. This was before I began working from home. I was drving and all the sudden i "awoke" to realize I was in the middle of an intersection with cars coming at me. Everything worked out ok, but it was scary.

I often experience severely blurred and foggy vision and even sometimes I cannot see out of one of my eyes or have tunnel vision. There are often times when my hand or foot is numb or I become weak on one side of my body. But for me this is part of my migraines.

I would like to hear from others who experience the extreme of migraines. Feel free to contact me at Together perhaps we can gain more understanding of this difficult disease.